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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi all, feel a bit bad posting this after reading about our Jenni. I saw Laura today, and she has said I need to cut back on work. She asked if the meds were helping, as she said my inflamation markers are beginning to go down. I said I feel about the same. She suggested adding pregabelin for the fibromyalgia to help me sleep better, as the amtitriptyline not doing much. She hqs prescribed 2 capsules of 75mg per day. I told her that the tramadol doesnt seem to do anything, and she said I need to be on an anti inflamatory as it will work better, but dont know why I dont have them prescribed. I have an appt with consultant on 16th July, so maybe he will prescribe them then. Just thought I'd let you know. BARBARA
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Barbara, I know it's difficult for you to cut down on work, I know you have said before that not something you can do. I would be interested to see how you get on with the new drug because I looked on the net to see about meds for Fibro and was thinking about asking my Rheumy if I could try something different, I''m now taking 50mg of Amitriptyline. Tramadol 300mg, Naproxen and paracetamol, I'm still in a great deal of pain and terribly tired and I'm still off work, I though it would be worth trying something else. Naproxen is an anti inflamatory. Glenys.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Glenys, sounds like a good idea to ask about different meds. Do you take tramadol at 300mg or do you mean 100mg x 3 I was on naproxen bedfore diagnosis, my gp prescribed it, but when she decided its osteoarthritis she took me off them saying that I dont have an inflamatory illness. After diagnosis I was onlhy offered the tramadol and paracetemol. Its hard to explain about pain, it seems that its a case of "well, thats all we can give you" and also the "give it time to work" surely painkillers should work straight away i,e, up to one hour after taking them, not weeks or months after!! OK rant over!!! Will have to see what consultant says in July, unless I can get my gp to prescribe them, I have an appt for a medicine review next week BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Barbs No please post,glad you had good appointment oh dear,sorry hun but i feel she is right not stop but cut down a bit. hugs,thats good a different drug for the fibro there are a few. but less overdoing things does help alot. ie learnt that when i overdo things fibro flares alot and nothing helps except rest. anti inflammtoires didnt u say you have asthma that may be why youve not been presribed them,could be wrong. thats good you got appointment in july,i got wait till september. dont even see the nurse.not sure why. anyway you post hun. thinking of you. lots lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry to hear you are in limbo again Barbara. If you can get the anti inflammatories they do help with the pain very quickly.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi everyone, melly, yes I am diagnosed with asthma, but have never had an asthma attack, its just a night time cough, for which I take singular and preventer pumps, I never use the releiver pump (salbutemol) and I am sure that someone else on here said that they have asthma and still take the anti inflamatories. Have my gp appt on Monday, so maybe he will be able to help. My back is killing me tonight, and feet and hands swollen as usual. Willl have a vey early night. Just one more thing, does anyone else have problems with getting on the site? i have it on favourites, but it wont work, so type in nras and when google brings it up it doesnt do anything and stays on the page. Eventually I get on by going into one of the other sections. It takes ages though. Hoping everyone has a good weekend, its meant to be a sunny one!! So for everyone who can make the most of the sunshine!!  BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello anti - inflam do act quickly so if you given these it will be good for you. I was on 500 naproxen
until last week when i was told to stop because i had inflam of the tummy with awful pains (very unpleasant)
so at the mo i am paracet , amitryp , and starting on lleflum very shortly. I had depo lst Thursday so
at the moment i am less stiff and in pain - thank goodness
Good luck
Rose
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Sorry no trouble in gettin on site
I google and national rhuumatoid arthritis society
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Hello Barbara. I meant 150 x twice daily. Although it does feel like these don't do much I find if I leave them off I am so bad that I can't do anything. I try to have breaks from the Naproxen because I am at a high risk from heart attack and stroke but it's the same as with the Tramadol that they don't seem to be helping until I leave them off. The Naproxen do work better for me when I have been on them for a couple of days though. It's does get you down trying to live with pain dosn't it and when you are working and constantly pushing yourself to keep going. So if there is something out there that could help then I think I would like to try it.I had that problem with the Naproxen Rose but it did get better, I always take them with food even if it's just a banana. Glenys. x
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi Barbara
Yes, took me a couple of hours today before I could get on the site.
Anne
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi Brabs ok hun thoguth best say,thats good glad you dont have asthma attacks,aww hugs sorry you in such pain tonight you rest up chill out time. yes good idea ask gp,ps my gp actaully was first 1 to give me anti inflammtoires then rheumy nurse changed them to naproxen i was on arthotec but low dose 50 mg im now on naproxen 500 mg 1 or 2 daily. good luck for gp apointment. ps are you off on monday? lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Barb
A close friend of mine who has fibro has just been put onto Gabapentin and she reckons they are not only helping her to sleep but have also helped a great deal with the pain.
Love Jeanxxx
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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melly, not off on Monday, the half term is the week after, but may be lucky to get a day off lol!! Jean yes i have herd of that medication. I have the pregabelin, which I think is a similar drug, they said it should help with pain and sleep Thnks everyone for help and support x x x  BARBARA
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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aww well im hoping your gp can or rheumy give you something that helps more fibro pain is horrid and the sudden fatigue with it to sending you gentle hugs,hope you have good weekend. lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Hi Barbara
After a particularly bad flare the gp put me on meloxicam anti inflamatory- 15mg after breakfast. It has helped me quite a bit. I also take tramadol at night which helps me sleep.
Hope you get things sorted soon
Maria
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Glenys, forgot to say I will let you know how the pregabelin goes. I know there are others, I am on the 75mg dose, but it can go up to 300mg. Maria, will have a word with my gp about the meloxicam will write it down before I go!! Thanks for all the help, what would I do without you!!!??? lots of love Barb x x  BARBARA
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